Aspie Daddy

Welcome to Aspie Daddy, the website of Gillan Drew, author of An Adult With An Autism Diagnosis: A Guide for the Newly Diagnosed. Here I blog about autism and parenting and whatever else takes my fancy.

I was diagnosed with Asperger’s Syndrome at 28, and now nearing forty, I live with my autistic wife and two infant daughters on the border of Dorset and Hampshire.

If you get the chance, check out my fiction website The Struggling Writer where you can read some short stories and novel extracts and some of my rants about writing.

Thanks for dropping by.

Gillan

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Mental Illness and Me: a Testimonial

I am mentally ill.

Despite having been mentally ill for much of my adolescence and most of my adult life, it is still not an easy thing to admit. Nor is the word ‘depression’ something I’ve ever really been comfortable owning.

The Black Dog, the Cancer In My Mind, the Darkness That Never Seems To Let Me Go – all of those seem better somehow, more free from the stigma of depression. I’ve spent my life trying to pass it off as something else – genius twinned with madness, a self-destructive temperament, a personality disorder. Depressed? No, never that.

Luckily for me, I was diagnosed with autism, which is one of the best ways of avoiding facing up to your illness. You can attribute all of your problems and difficulties, whether motivational, social, functional, emotional, behavioural or cognitive, to that umbrella term. Don’t want to leave the house? Autism. Always interpret things in a negative way? Autism. Feel you just can’t cope anymore as a husband, a father, a human being? Always the autism.

And so I’ve spent the better part of a decade denying that I suffer from depression. I take antidepressants to tamp down the overactive sensory and central nervous system responses caused by my autism, I say. I take anxiety management and mindfulness courses to address my social phobia, I pretend. I wrestle with the urge to self-harm because I’m a father and I don’t want them to take away my kids, without ever asking why I even have those urges to begin with.

Why do I never admit I have depression?

Because I hate depression and I always have, ever since I was first formally diagnosed with it at 17. Because despite repeated assurances to the contrary, I always felt it was a weakness, something that happens to melodramatic teenagers and socially incompetent adults, and not real people. And because, as an illness, it’s just so self-centred, indulgent and sick.

Most of my prejudice comes from within. You’re a wimp, I think. Just get up and do it. Everyone else manages, so why can’t you? You haven’t got anything to be miserable about. Why are you just wallowing? Why can’t you take steps to get yourself out of this funk? Stop being such a fucking baby.

And yet the big secret, the one that nobody likes to admit, is that deep down we actually love our depression. Because it’s ours, and it’s been with us all our lives, our constant companion, and we don’t want to lose it. We get off on just how miserable we are. It’s part of us, and we look on those who ‘get better’ as traitors to themselves, because it’s not real, there’s no ever getting better, this is who we are, depression is what makes us special, and we think we can coexist with it, channel it, control it.

Until we reach a point, as I did a little over two weeks ago, where we realise that it has taken control of us, and it’s eating us alive, and there’s no place else to go but down.

I wish you didn’t have to reach rock bottom to get that epiphany. I wish there was a way that the insight would be granted you before you’re at the point of desperation. But there it is.

I went my doctor with a care worker, and as I started to tell her how I felt, all the denials fell away, and even I hadn’t realised how bad I’d become. As I put into words all the thoughts and feelings I’d bottled up, I discovered just how much I’d been holding in. For forty minutes it kept pouring out of me, the emptiness, the misery, the tears I had never shed. And bless the doctor, even though the appointment massively overran, she gave me the attention that I desperately needed at the time I needed it most.

She prescribed a new antidepressant, in addition to the one I’m already on, referred me to the Community Mental Health Team and sent me for blood tests for possible ME. And despite being hit by a multitude of side-effects – dry mouth, tiredness, nausea, diarrhoea, and a sudden dizziness that comes on every time a dog barks, a door slams or my phone vibrates in my pocket – I feel like a different person. Whether it is because of the pills, the distraction of the side-effects, the outpouring of emotion or some kind of placebo doesn’t matter to me at all. All that matters is that I’m not where I was.

What is astonishing is the change I’ve seen. It’s almost like an out-of-body experience. My thoughts are clear, my heart is stilled. The guy who walked into that doctor’s office a week ago – that angry, bitter, resentful, miserable, broken wretch of a person – is gone. And I’m glad. That guy wasn’t me. I don’t know who he was, but he wasn’t me. A veil has descended over him, as over the dead, and I struggle even to connect him to me. It is as though Gillan died, and I am what has been reborn in his stead.

So finally, with the clarity of thought to reflect, I look at him, this agitated, toxic, troubled soul, and I think: how the hell did he get like that? How did he get like that and how did he manage to keep going so long?

The second question answers the first: he got that way because he kept going so long.

I read a book a few years ago entitled Depressive Illness: The Curse of the Strong, by Dr Tim Cantopher. The central premise flips the received wisdom on its head – people with depression are not the weak ones in society but the strong. The weak encounter something difficult, unhealthy, damaging, and they run away from it, quit, give up. The strong put up with it, and press on, and keep going, long after they should. The weak do not endure long enough to get depression; the strong keep going, with no let up or sense of quit, until they’re used up and literally can’t go on any more.

That’s why Gillan got to where he was two weeks ago. He was too damn strong for his own good.

But now he is me, and I will no longer deny it.

I am mentally ill.

I am depressed.

I won’t be quite so strong in future.

And that’s nothing to be ashamed of.

Pseudoscience and Amber Necklaces: Just Say “Magic”

In my previous post I poked fun at people who believe an electronic box can detect allergies, enzyme deficiencies and underperforming organs simply by running a mild electrical current through the skin (electrodermal testing). In this post, since a girl turned up my daughter’s birthday party wearing one the other day, I’m turning my attention to a favourite medical intervention of the tie-dyed parent: the amber necklace.

Amber necklaces, for those fortunate enough never to have procreated, are strings of amber beads you make your infant wear from the age of three months to seven years, usually around the neck but sometimes around the wrist or ankle, to soothe their teething pains and whatever else happens to ail them. If you question the wisdom of tying something around a baby’s neck, fear not: they are designed to break at the slightest pressure, so you only have to worry about your child choking to death on amber beads and not being strangled.

Now, I’m not going to say that amber necklaces don’t have painkilling properties, mostly because I’m afraid of getting lynched by the Mumsnet mob, but also because debunking every nonsense health fad gets tedious after a while. Instead, I’m going to focus on an aspect of the marketing of amber necklaces that really gets my goat: pseudoscience.

I hate pseudoscience, I really do. It’s the hot chick in the porn film who puts on a white coat and glasses to pretend she’s a professor when we all know she’s wearing nothing underneath.

Exhibit A: succinic acid.

While some of the advertisers go all airy-fairy, citing ancient wisdom and claiming amber is a bio-transmitter that contains an electro-negative charge that activates the root chakra to promote natural healing, a surprising number of others drape themselves with the veneer of scientific credibility. Baltic amber contains succinic acid, they say. Succinic acid is rich in antioxidants that combat free radicals, they continue. Occurring naturally in the body, it’s a key intermediary in the Krebs cycle, a stimulant to the neural system aiding recovery, and a boost to the body’s immune response in fighting infection.

Sounds good, doesn’t it? I don’t know if any of that is true or not – I suppose I could find out – but there’s no need, because it doesn’t matter. All that matters is: does the mechanism for getting that succinic acid from the amber into my child sound plausible?

According to the intellectual behemoths behind amber necklaces, the infant’s body temperature dissolves the succinic acid from the amber, allowing it to be absorbed into the baby’s skin.

Wow. Just wow. After dazzling you with medical jargon, they drop the ball spectacularly with that one.

You don’t need to know anything about succinic acid to realise how extraordinarily unconvincing that explanation is – it only takes a soupcon of logic and the distant memory of your basic chemistry lessons at school. Are they really suggesting succinic acid is so incredibly stable and unreactive it can remain in fossilized tree sap for millions of years, yet so amazingly unstable and reactive it will dissolve with the barest application of warmth? Really?

Furthermore, the reason most alternative health advocates avoid mainstream medicine is because they dislike the idea of putting chemicals (i.e. medicines) into their children’s bodies. Yet they seen strangely fine at allowing an unknown strength or dose of a natural chemical to seep into their babies. Wouldn’t you want to know more? How much succinic acid is too much? What happens if they OD? Are there any side effects? What if it’s a really hot day?

Frankly, if someone told me that chemicals were leaking from my children’s accessories into their bloodstream through their skin, I’d be somewhat worried about that. I certainly wouldn’t go out and buy one specifically because it can drug my kids. And if succinic acid is so useful, why not buy it in pill form? Then you could control exactly how much they’re getting. Doing it via a necklace seems a little reckless to me.

Most advocates of alternative medicine claim to be inquisitive, discerning and sceptical people. Instead of blindly accepting the word of mainstream medicine like the rest of us sheep, they aren’t afraid to question the orthodoxy and seek out the Truth (with a capital T). Strange, then, that people who reject the scientific proofs of mainstream medicine appear so ready to believe anything that alternative medicine tells them, no matter how much it goes against basic logic. In fact, the more it flies in the face of accepted medical doctrine, the more they seem to accept it.

Ironic, don’t you think, that so many non-conformists choose to non-conform in exactly the same way?

Anyway, I don’t have a problem with people giving their kids amber necklaces, or wearing copper bracelets or magnets or whatever other unscientific fad they choose believe in. For one thing, it makes hippies easy to spot; and for another, so long as they’re using them in addition to regular medicine, rather than instead of, and they’re not hurting anyone, it’s nobody’s business. If it makes them feel good, helps them get through the day, then more power to them.

All that I ask is that people are honest about them. Don’t say it works because of some pseudoscientific claptrap you’ve pulled out of your ass. It’s patronising and offensive to anybody who understands basic science. Just say it works by magic. I would respect that far more.

Magic Allergy Testing Rubbish

I have mentioned before, many, many, many times, that I am a sceptic. I don’t believe in ghost hunting, conspiracy theories, psychokinesis, homeopathy, UFOs, or the the anti-vaxxer movement. I don’t suffer fools gladly, and I most certainly don’t appreciate people with zero knowledge of medicine or healthcare offering me medical advice. Indeed, I think I’ve made it pretty clear to not only my readers but everybody in my life that if they come at me with pseudo-scientific, superstitious nonsense I’m going to cut them off at the knees.

So why do some people never learn?

My eldest daughter has asthma, for which she uses an inhaler. I don’t have a problem with that, because why would I? A certain person in my wife’s family, however, has a different view.

‘You want to cut her reliance on that inhaler,’ she said. ‘It’s very bad to use it long-term; it causes so many health problems and it’ll give her bad teeth.’

As someone who has asthma and has used an inhaler for around half my life, I have never heard something so absurd. But she doubled down on the ridiculous by suggesting we send my daughter for an allergy test to see what we should avoid, the implication being we can ‘cure’ her asthma by going gluten-free and eating more quinoa.

She then offered to put us in touch with her nutritionist for an allergy test, which would involve connecting my daughter to a box that measures the electrical resistance of her cells and organs (a.k.a. electrodermal testing). Knowing I’m a sceptic, she offered the ‘proof’ that this same nutritionist had used the machine to diagnose a friend’s one-year-old as having too few digestive enzymes, and suggested the foods that would remedy this.

The first warning sign was when she said ‘nutritionist’. It doesn’t necessarily mean the person is a crank, but while ‘dietician’ is a registered, protected title, like doctor, ‘nutritionist ‘ is not, meaning anybody can claim to be one. That’s not to say that there aren’t professional nutritionists out there – you can probably trust a ‘registered nutritionist’ with a BSc in Nutrition who is voluntarily regulated by the Association for Nutrition, for example – but if they wear a beanie hat and smell of yoghurt, it’s probably best not taking lifestyle advice from them.

The second warning sign was when she said the nutritionist would perform an allergy test. While dieticians are qualified to give advice about diet with respect to specific medical conditions, such as coeliac, nutritionists are not – they give more general advice about diet and healthy eating. So why would a nutritionist be doing an allergy test and then giving advice about the results?

The third warning sign was, of course, the magic box that somehow diagnoses every problem in your body. I mean, seriously, do people really believe that? Have they never visited the doctor for a mystery ailment and been sent for further tests? Why would he give you a blood test, refer you for a gastroscopy, do a stool culture or dip stick your urine if he could just hook you up to a machine and know you inside and out, lickety-split?

And the suggestion that running a very minor electrical current through your body can tell a machine that you are lacking in digestive enzymes is so ludicrous, it’s not even worth discussing. All I will say is that when the NHS, the National Institute for Health and Clinical Excellence (NICE), the Australian College of Allergy, the Australasian Society of Clinical Immunology and Allergy, the American Academy of Allergy, Asthma and Immunology, and the Allergy Society of South Africa all advise against electrodermal testing as it has no scientific basis whatsoever, it doesn’t take a genius to work out it’s a pile of BS. Yet still people believe it! Why are so many so ready to turn their backs on reality and common sense to live in a world of make-believe? I just don’t get it.

Yet despite my pointing out the absurdity of the suggestion, and stating in no uncertain terms that we would not be doing it, my wife took it seriously and is now worried about the dangers of long-term use of inhalers, and keeps asking me if there’s any harm in having the test done. The harm, dearest, is going to a snake-oil salesman instead of a medical professional in order to get fake medical advice about a chronic respiratory condition that is already being dealt with by the asthma nurse. The harm is that we’re being encouraged to turn against inhalers, the very medicine designed to treat asthma, in favour of magic beans. And the harm is that if you go down that road you lose my respect because you reveal yourself to be a gullible idiot.

But she won’t see things my way, which is so frustrating, her response being that I am entitled to my opinion and she’s entitled to hers. Oh for crying out loud, I replied – it’s not an opinion, it’s a fact. The sky is blue; water is wet; electrical boxes can’t tell you how much bacteria lives in your gut. And when it comes to the safety of my children’s health, her opinions don’t matter one jot.

I reminded her that I had one of these tests done myself, around twenty years ago when I was young and stupid, and was highly dubious of it even then.

‘It didn’t work because you’re a sceptic,’ she said.

‘So you need to believe in it for it to work?’

‘Yes.’

‘Then it’s a placebo, and the bare minimum standard you can expect of a medical intervention is that it performs better than a placebo, so what good is it?’

But you can’t win them all – there’s no arguing with stupid.

For the record, steroidal inhalers can slow the growth of children, but this only affects 1 in 10,000 sufferers. And that’s with high-dose, long-term use, while my daughter’s dose is entry-level low. The risks of not treating your asthma are considerably higher, and I know this from personal experience.

As a baby, my parents were adamant that I had asthma. The doctors were adamant that it was whooping cough. By the time the doctors realised their mistake, my asthma had been untreated for so long that I was left with scarred bronchioles. Bronchioles are the tubes in your lungs that carry the air you breathe to the different regions, and they are designed to be elastic, expanding to increase airflow when you’re exercising and need more oxygen and contracting when you’re at rest. Guess what? Scarred bronchioles don’t stretch.

What this means is that no matter how fit I get or how healthy I am, I become out-of-breath very quickly during exertion because my tubes just won’t open up. When I get stressed or anxious or ill, I can’t take the deep breath needed to make me feel better, and if I ever do yoga or tai chi, I have to take two breaths for every one that you’re supposed to take. All because I didn’t have an inhaler when I should have.

So, no, I don’t take it lightly when somebody advocates replacing tried and tested and scientifically proven medicines with sugar pills, especially when my wife is unduly influenced by her family members.

I just can’t comprehend why seemingly rational people so often switch off their critical thinking skills when it comes to their health. But maybe my wife is right, and it comes down to belief. They put their faith in the nutritionist and his mysterious box the same way they trust the tarot card reader and her pack, the fortune teller and her crystal ball, the astrologer and his birth charts – because it offers certainty, however false, in an uncertain world.

You know, I think it might be fun to send my wife to have one of these tests herself. Since her hands are always sweaty, and the tests work through skin conductivity – or galvanometric skin differentials that signal energy imbalances along meridians, apparently – she’ll probably test positive for every allergen and health problem programmed into it. Then we’ll see if she continues to think it’s real, or if she’ll admit it’s a con to sell her nutritional and dietary supplements!

The Dream

The Dream

Since my other site is pretty-much defunct, I thought I’d share some of my writing here at Aspie Daddy. I wrote this story in late 2015 for a competition on the theme ‘heart’. It was about my fears at becoming a new father. I have submitted it to various places and have received much positive feedback. However, several places have said it is too sad for them. I thought it was too good to leave wasting away on my hard drive as it might actually help people in the same situation. Let me know in the comments what you think.

 

The Dream by Gillan Drew

The new parents looked up as the midwife entered the room, the little bundle in her arms wrapped in a white blanket.

‘Here she is!’ she announced cheerily. ‘Who wants to be the first to hold her?’

‘I’ll have her,’ said Stephanie, over on the bed. She wore a light blue dressing gown over her hospital smock – it made her face, pale from blood loss and the ordeal of the birth, look grey in the strip lighting.

‘Be sure to support her head,’ said the midwife, a broad fifty-something with a Geordie accent.

The girl took her baby, careful to place the little one’s head in the crook of her arm, and looked down into her face.

‘Hello,’ said Stephanie. ‘I’m your mummy.’

‘Do you have a name picked out for her?’ the midwife asked.

‘Yes: Cora.’

‘That’s a lovely name.’

‘Tom chose it, didn’t you, Tom?’

Slumped in a chair in the corner, his face as pale as his wife’s and black bags under his eyes, Tom merely grunted.

‘Do you want to see her?’ the midwife asked.

Tom shook his head. ‘I’m good,’ he said.

‘You’re sure?’

‘Really,’ said Tom.

Stephanie rocked the baby in her arms. ‘How much does she weigh?’

‘Eight pounds,’ said the midwife. ‘A good size.’

‘You hear that?’ the girl said, nuzzling close to her daughter. ‘You’re a good size. No wonder mummy found it so hard to get you out.’

It had been a horrible labour, coming on the end of a horrible pregnancy. Nine months of morning sickness and mood swings had given way to twenty-six hours of agony, which culminated in an injection into Stephanie’s spine, followed by a ventouse suction cup on the baby’s head and, ultimately, forceps. She was still numb below the chest, unable to get off the bed.

Looking over at Tom, Stephanie smiled. ‘She has your nose,’ she said. ‘My good looks, of course. She’s the most beautiful thing I’ve ever seen. You need to come look at her.’

Tom shook his head again.

Unfazed, Stephanie pushed up the woolly pink hat on Cora’s head. ‘Dark hair! Like your daddy.’

‘They normally lose that in the first few months,’ said the midwife. ‘Then it grows back the colour it’s going to be.’

‘What colour are her eyes?’

‘I imagine they’re blue,’ said the midwife. ‘They normally are with newborns. Do you want me to have a look?’

‘No, that’s okay,’ said Stephanie. Reaching inside the blanket, Stephanie pulled out Cora’s hand. ‘Look at those little fingers,’ she said. ‘They’re so perfect.’ She looked over at Tom again. ‘I can’t believe we managed to make something so perfect.’

Tom looked away.

‘Please come and meet her,’ said Stephanie, and for the first time her voice started to crack. ‘Please don’t be like this.’

‘You really should come and hold her,’ the midwife urged.

‘Why?’ Tom asked. ‘What’s the point?’

Stephanie let out a sob.

Sighing, Tom studied his feet for a few moments before his shoulders sagged. ‘Fine,’ he said, standing in one swift movement. His legs ached from all those hours standing by the bedside, flitting between hope and despair.

‘Thank you,’ Stephanie whispered, her eyes glazing with tears.

‘I won’t be holding her long,’ he replied. ‘I’m only doing this for you.’

‘You’re doing it for all of you,’ said the midwife as Stephanie eased the little bundle into Tom’s arms.

‘Careful of her head,’ she said.

‘I know,’ Tom replied. He’d practiced for months on dolls and teddy bears and in his dreams – he knew exactly what to do.

He was struck by how light Cora was. Stephanie had put on almost two stone during the pregnancy, and the baby was only a quarter of that. And she was no bigger than a rugby ball, when Stephanie had been huge – still was, he thought, as though Cora was still inside, still waiting to be born.

There was a tight band about his chest and the lump in his throat burned, but he wasn’t going to cry. They were watching him. They were expecting something of him. So eventually he had to look down, had to engage with this, loathe as he was to do so.

Stephanie was right – his daughter was beautiful. Between the rough white of the hospital blanket under her chin and the pink hat pulled down almost to her eyes, she had the face of an angel. Long, dark eyelashes, full lips, and she did have his nose. Her skin was impossibly smooth, free of the slightest blemish. And her purple fingernails, so delicate, her fingerprints, the little dimples of her knuckles – he could have lost himself contemplating the mysteries of how they’d been able to create something so complex, so pure.

The hands those hands would hold, the fingers that would intertwine with hers. The smiles that would crease those lips. The things she would see, smell, touch, taste. The life she would live – what a life.

The ticking of the clock on the wall, the distant hum of the traffic on the spur road, cut into his thoughts. Years later, he would still be haunted by their indifference.

‘Talk to her,’ the midwife urged.

‘What should I say?’

‘Whatever your heart is telling you to say.’

He turned away from the others, gently squeezed his baby girl, gazed into her cherubic face, half Stephanie’s, half his, and he wet his lips.

‘I would have been your dad,’ he said quietly, rocking her softly from side to side. He puffed out his cheeks, fought back the tears. ‘I would give anything to have been your dad.’

‘You were her dad,’ said the midwife. ‘You are.’

‘I would have been,’ said Tom. He sniffed, tried to compose himself. ‘So what happens now?’

‘Well, I can leave you alone with her, if you’d like. There’s some paperwork to be filled out, I’m afraid, but we can sort all of that out later. For now, take some time as a family.’

Tom nodded and the midwife opened the door. ‘I’ll be back to collect her in a few minutes.’ She hesitated in the doorway. ‘The way to look at it,’ she said, ‘is that she was just born sleeping. That’s all. She was born sleeping.’

‘Do you think that helps?’

‘I do,’ said the midwife, and closed the door.

The look on Stephanie’s face broke Tom’s heart, and it was all he could do not to break down.

‘Is it true?’ she asked. ‘Is she just sleeping?’

Tom clenched his jaw. The lump in his throat was choking him. ‘Yes,’ he said. ‘She’s just sleeping. We’d best not wake her.’

Taking a deep breath, he placed Cora on the bed alongside her mother, watched as she gazed lovingly down at the little baby and gently stroked her cheek.

‘You’re so small,’ she said. ‘So beautiful. And mummy loves you very much. I’ll be here when you wake. I’ll be waiting for you forever.’ She looked at Tom. ‘Tell her you love her.’

Wiping his eyes, he managed to say, ‘I love you, sweetheart.’

‘And you’ll be there for her when she wakes up.’

‘My heart will be waiting forever for you to wake,’ he said, before, overcome, he buried his head in Stephanie’s belly, as he’d done a thousand times since they found out they were expecting.

When his sobs had finally subsided, he felt her fingers in his hair. ‘What do you think she’s dreaming of?’ Stephanie asked, so softly he almost didn’t hear her.

He looked at Cora through his tears, so peaceful, so serene. ‘I think she’s dreaming of us,’ he said. ‘She’s dreaming of all the love we’re going to give her, all the things she’s going to experience. We’re digging a sandcastle and she’s decorating it with shells. She’s playing with her toys and laughing because I’m making funny faces, and she’s cuddling her mummy and smiling because she knows she’s safe. She’s dreaming of castles and mountains and forests, horses running across the plains, and we’re always with her. Her heart is full, fit to burst with the love we share.’

He felt exhausted, battling to get the words out against the pain searing in his neck and chest.

‘Her heart is full,’ he repeated.

Stephanie continued to stroke Cora’s cheek. ‘It’s a good dream,’ she said.

‘She’s safe there, and happy, and she never has to grow up.’

Stephanie smiled, though there were tears streaming down her cheeks. ‘Then maybe it’s okay if she never wakes up. She can live forever in her dream.’

‘Yes,’ said Tom. ‘And she can visit us in ours.’

‘Then I’ll never want to wake up.’

‘Me neither,’ said Tom, and lying down on the bed beside his wife and daughter, he closed his eyes to sleep.

THE END

Copyright, Gillan Drew, 2015.

Thank You

After my previous unhappy post, I would to thank all the people who have reached out to offer me love and support. I was in a very low place – I still am – but I’m getting up every day and doing what needs to be done. There are arguments for and against sharing your pain in the internet – for showing vulnerability in any sphere of life – but despite all the trolls and hatemongers out there, I firmly believe the majority of people are decent, kind and compassionate and only too willing to help out a person in need, and your responses are evidence enough.

Love like your heart has never been broken and trust like you’ve never been betrayed. Life is better that way.

Aspie Daddy will continue as before!

Much love,

Gillan

Midlife crisis or male postnatal depression?

Dear readers, I have something to admit: I am completely, utterly and irreparably miserable.

How miserable? I don’t remember the last time I felt at peace. There are too many hours between waking up and going to bed, hours where I swing from sadness to annoyance, from cynicism to hopelessness. Getting through each day is a real struggle. I have no energy, my brain won’t focus, and I can’t seem to motivate myself to do anything other than eat and sleep.

Which is pretty rubbish when you’re married with two kids.

I’ve felt this way – not waving but drowning, to quote my favourite poem – since a couple of months after my second daughter was born, so around a year-and-a-half now. True, looking after two children is exponentially more difficult than one, but instead of gradually getting used to it, my low mood has been getting worse over this period until I’m now in a very bleak place indeed.

It’s taking its toll on my life and relationships. I’m the fattest I’ve ever been, have lost interest in all my hobbies, and get snappy at everyone I know. As a result, my marriage is failing, I don’t have any friends, and even my eldest daughter, not yet four, has started asking if I’m okay because she knows, intuitively, that there’s something wrong with daddy.

I don’t want to go to the park; I don’t want to have fun and games; I just want to sit on the sofa, drink my coffee, and get to the end of the day without either breaking down in tears or shouting at someone. Battling endless irritation, despair and emptiness, with no light to alleviate the darkness, leaves you feeling like a terrible dad, terrible husband and terrible person, because you pretty much are just terrible all round.

My wife thinks my antidepressants have stopped working. I thought the same around ten years ago, so went to a psychiatrist, only to be told that of course I’m miserable – I’m intelligent enough to know all the things I’m missing out on thanks to my problems; feeling miserable is the normal reaction for a person like me, so get used to it, because you’re in for a long and bumpy ride. Inspirational. Should work for the Samaritans.

I’m bored, irritated, unfulfilled. I’m sick and tired, fed up, run down and worn out. Smiling fake smiles as I build yet another Lego tower, making out that I enjoy pushing a swing for the ten-thousandth time, pretending watching Peppa Pig isn’t eating my self-esteem and devouring my very soul.

I escape from the struggles of the present by dwelling on the past and dreaming of a different future. All I can think is: I hate this. I want to be more than this. I want to be something. I want to make a difference. I can’t live like this any longer.

I’ve lost my identity, my path, my sense of purpose. I’ve been reduced to a nanny. I know, parenting is meant to be the hardest, most important and ultimately rewarding and fulfilling job going, but let’s get real – nobody got knighted for being a dad. There are no awards for parenting, the prospects stink, you’re on call 24/7, you don’t even get a lunch break and you can forget all about remuneration. While it might be enough for some, it simply makes me feel like a massive loser and a giant failure.

I feel like the train passed me by a long time ago. I missed the parade. I had a chance to triumph, twenty years ago, but I walked the other way, and now I’m fat, and bald, and lost.

To put things in perspective, I used to be a big shot. At school I was hot shit. The best student of English they’d ever had, I was going to change the world and make it my bitch. London, Paris, New York – the sky was the limit. Everyone thought I was going to ascend to the stratosphere. Dean at Oxford, celebrity author, This Is Your Life. Should I be a barrister, astronaut, brain surgeon? I could have done anything I put my mind to.

Life worked out differently. I had the smarts, but I lacked understanding – common sense, intuition, the ability to relate to others. The depression, anxiety and mental illness didn’t help either, or the self-harm, the suicidal ideation.

At my quarter-life crisis I started training to be a nurse because I wanted to help people; switched to medicine when my ego caught up with my philanthropy; had a breakdown at 27 while halfway through the application process to join the police. Was diagnosed with autism at 28. Couldn’t function till I was 30.

Reassessing my life, I decided to become an academic. My teachers always told me I would be miserable anywhere in life outside of academia, and they were right. ‘You have a gift you need to share with the world,’ they said. So I got a Degree in History and then a Masters, intending to go on and get my PhD and bury myself in an abstract world of facts and figures, where my ability to talk at people instead of with them would be a help instead of a hindrance. My tutors thoroughly encouraged me in this; they told me I was made for it.

But instead, four years ago I became a full-time dad. It’s a sacrifice, I know that, but I feel like I’ve sacrificed so much there’s nothing left for me. The people who used to copy off me at school, the kids I used to babysit, they’re bankers now, lawyers, stock brokers, hedge-fund managers. The kid who was one day going to eclipse them all spends his days changing nappies, unblocking toilets, playing peekaboo and dying inside.

I wish just being a parent fulfilled me, but it doesn’t. I want a career. I want to make a difference. I want to be somebody, but I’m almost forty, haven’t properly worked for ten years, and have a history of depression, self-harm and nervous breakdowns, not to mention autism, crap Theory of Mind, and problems relating to people. I’m too old to join the navy; too unstable to become a paramedic; too autistic to join the police. I’ve considered nursing or teaching, but £9000 a year tuition fees are out of my reach, and I certainly can’t afford the time or money to continue my studies.

I’m bursting with desires. I want to spend my life in museums, art galleries, theatres; I want to go to poetry readings, jazz cafes, film festivals; lectures, seminars, performance, dance; I want to see dinosaurs and spaceships, architectural wonders and technological genius; I want to discuss politics with strangers, debate literature with friends, argue semantics in crowded halls; walk the same streets as the greats of history, the greats of now. In short, I want all the things a city can provide, but I live in a little village in the arse-end of nowhere, as far from the throbbing pulse as you can get, with a wife and kids and no job or capital to finance a move I know that they wouldn’t be willing to make.

I can understand now why people walk out on their families. I’ve always thought a guy who leaves his wife and kids for a bit of excitement is a scumbag, but for the first time I can see the appeal. When the choice is being miserable or taking a chance on happiness, can you really begrudge someone who makes that leap? How much easier, I keep thinking, how much easier just to pack my bags and disappear? At times I feel desperate.

But it’s no solution. The number of men who reach this age and start to feel old so buy a sports car or a motorbike and trade in the wife for a younger model – it always seems they gain a month of joy and a lifetime of pain, because there’s no going back. Once you’re gone, you’re gone.

And I know that the grass is always greener, too. If I left, I would bring myself with me, and my misery would come too. Because it’s not really my family stopping me from being happy or preventing me from fulfilling my destiny: it’s me. I am responsible for my failure to thrive. I am responsible for the decisions I made. The depression, the autism, the breakdowns, they didn’t make things any easier, but ultimately, where I am in life, or am not, is down to me.

But I’m miserable, and I don’t know how to fix it. Midlife crisis or male postnatal depression? Maybe it’s just the realisation that I’ve bitten off more than I can chew, and if I’m not careful I’m going to choke on it.

Pedantry and Autism: a love story

Pedantry: noun. Excessive concern with minor details and rules; over-commitment to formalism, accuracy and precision; prioritising of simple knowledge (facts and rules and obscurantism) over more general knowledge and/or common sense. Used in a negative context.

Ladies and gentlemen, I am a pedant. I have always been a pedant and likely always will be. It stems from the black-and-white thinking style of my autism, my propensity for rote learning and my obsession with the little things, especially my ability to see the minutiae of the trees yet somehow spectacularly miss the forest. I speak ‘correctly’, even though I acknowledge there is no ‘correct’ way to speak; I try to ensure that I am one-hundred percent accurate in everything I say and write, while accepting that perfection is an impossible dream; and I follow the rules, no matter how stupid or seemingly arbitrary.

Despite its negative reputation, I don’t think being a pedant is necessarily a bad thing.

True, if you correct people on their grammar or point out the factual and logical fallacies of their arguments, it’s often seen as arrogant, condescending and belittling. To quote Ben Shapiro, however: facts don’t care about your feelings. Thanks to my autism, and unfortunately for those around me, I’m far more committed to the facts than I am to anybody’s feelings.

It is not my intention to hurt people’s feelings, though. Correcting them when they make a mistake is how I communicate and share my love of language and history with those around me. Much of the time, when I interrupt the flow of the conversation to tell somebody the true meaning and origin of a phrase they’ve misused, it is done with good intentions and because I think it’ll enrich their understanding and appreciation of the world around them. Partly, it’s to show off and try to impress people.

Only sometimes do I do it to be a dick.

But while I can say it comes from a place of genuine concern for the intellectual development of my fellows, another and probably equally important factor is that I can’t not do it. Inaccuracies cause me pain. My cringe-factor is turned up to eleven every time I hear something that’s patently wrong and the only way of alleviating that crushing horror is to put them straight. I can’t let them walk around being wrong. Entitled? Yes, you could probably call me that. But would you rather suffer a momentary embarrassment and then go through the rest of your life being right, or keep on exposing your ignorance to everyone who knows the truth?

It’s been said that the moment an Englishman speaks, another Englishman judges him, so it’s important to get it right. It’s not ‘I drunk it’ but ‘I drank it’, not ‘could of’ but ‘could have’, and there are no such words as supposably, irregardless, and expresso. I imply, you infer; a chicken lays an egg but people lie down; and if I affect something, I create an effect. Unique means ‘one of a kind’, so things cannot be quite unique or very unique, and if you say ‘reverse back’ or ‘past history’, you’re using one word too many. Little things, but they go a long way.

It’s hard to blame people, however, when everywhere they’re exposed to poor grammar. Songs called ‘Beneath Your Beautiful’; pop culture expressions like ‘You sunk my battleship’; movies entitled Honey, I Shrunk the Kids. No wonder so many people think that you are hanged, not hung, or that you can ‘literally’ die of embarrassment, yet still be able to tell the tale. And don’t get me started on there, their and they’re.

Misused idioms also hit my ear like nails down a chalkboard. It’s not ‘chomping’ at the bit, it’s ‘champing’, referring to an eager horse biting down on its metal mouthpiece; a damp ‘squib’ is a small explosive device, not a tentacled sea-creature; and ‘tenter hooks’ stretch hides over a wooden frame to make them anything but tender. Language evolves, sure, but there have to be standards, otherwise we’ll all end up speaking gibberish and nobody will be able to understand each other.

I can’t stand people promoting falsehoods either, like the guy who sat in front of me on a ferry into Portsmouth one time, who pointed to HMS Warrior and told his wife it was HMS Victory. That might seem minor, but come on – how can you mistake the legendary Victory of Trafalgar and Nelson fame, a wooden-hulled 1765 first rate triple decker ship-of-the-line that is an integral part of British history and national identity, with an iron-hulled 1860 armoured frigate? How could I not correct that error? It’s something every schoolboy should know.

But the most egregious recent example I’ve come across is in Jon Sopel’s bestseller If Only They Didn’t Speak English. As North America Editor for BBC World News, he should know a thing or two about a) facts and b) accuracy, yet when writing about race relations in the US, an incendiary topic that demands care and attention, he displays an unforgivable ignorance. He writes about ‘the literally millions of Africans rounded up and shipped off in the most appalling, fetid conditions to the East Coast of America’, and how ‘twelve and a half million people left the ports of Africa and came to America in leg irons’. All of this suggests that the slave trade was centred on the US and that it’s an exceptional case in world history, a view that supports certain political ideologies but is entirely inaccurate.

Don’t get me wrong, slavery was awful and I don’t wish to minimise the suffering of those affected, but sensationalism and emotion should never take the place of cold, hard facts. Luckily, these are readily available at the Trans-Atlantic Slave Trade Database, thanks largely to the work of professors David Eltis and David Richardson of Emory University. Of around 12.5 million slaves shipped across the Atlantic in the period 1519-1867, fewer than 350,000 – less than 5% of the total – went to what is now the United States. Around 40% went to the Portuguese colonies in Brazil, 11% to Jamaica and the rest around the Caribbean and South America.

It is therefore wholly inaccurate to claim that ‘literally millions’ of Africans were shipped to the East Coast of America’ or that ‘Twelve and a half million people…came to America in leg irons.’ More than that, it’s irresponsible as it feeds into the myth of American Exceptionalism and continues to inflame racial tensions. I would have expected a person of Sopel’s background to be more careful with his facts. I would also have expected this misinformation to be picked up on and corrected in the subsequent editions, but it has not, meaning thousands of readers around the world will read it and believe that ‘millions’ of Africans slaves were shipped to the US, and use this ‘fact’ to inform their erroneous view of the world. And that annoys the hell out of me.

(To provide further context, the peak figure of American slavery was 3.9 million, recorded in the 1860 census. Furthermore, in the same period that less than 350,000 African slaves were shipped to America (388,000 according to some sources), more than a million Europeans were held as slaves in Africa.)

Pedantry might be seen as bad, petty, unkind and inflexible, but sometimes, as in the Jon Sopel slavery case, it is by far the better approach than playing fast and loose with the facts. As an autistic individual, pedantry is in my nature, as it is in many others who share my condition. We thrive in academia, in the sciences, in linguistics, where accuracy and obsession over the minutiae are seen as strengths instead of poor social skills. And who knows? One day, the difference between the survival of the species and our unfortunate extinction might come down to somebody spotting a single misplaced integer.