Aspie Daddy

Welcome to Aspie Daddy, the website of Gillan Drew, author of An Adult With An Autism Diagnosis: A Guide for the Newly Diagnosed. Here I blog about autism and parenting and whatever else takes my fancy.

I was diagnosed with Asperger’s Syndrome at 28, and now nearing forty, I live with my autistic wife and two infant daughters on the border of Dorset and Hampshire.

If you get the chance, check out my fiction website The Struggling Writer where you can read some short stories and novel extracts and some of my rants about writing.

Thanks for dropping by.

Gillan

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New Blog: The Struggling Writer

Hey there, Aspie Daddy fans.

I have started a new blog about my struggles to become a fiction author. It will be a mix of short stories, novel extracts, book reviews, posts about writing and whatever else inspires me. There’s already a short story up, a real tearjerker, so be sure to bring a hanky.

I look forward to welcoming you to The Struggling Writer (www.the-struggling-writer.com).

A Problem of Discipline: My Toddler

Back in April I started a three-part series grandly entitled How to Discipline a Toddler because I was a smug git. At the time I had a very well-behaved toddler that I was easily able to understand and control, a foolproof weapon called the Naughty Step that could solve any problem, and the patience of a saint. The world could only stand to benefit from the fruits of my experience.

Regular readers of this blog might have noticed that after starting this series, the frequency of my posts dropped off the face of the Earth, and I am yet to write number three. The reason for this, I can now reveal, is that almost immediately after starting to write about how great I am at disciplining my toddler, things became slightly more problematic – which is a nicer way of saying that my daughter Izzie morphed into a freaking demon child.

Despite my best attempts to stress that good behaviour is not dependant on an external force but an internal sense of right and wrong, Izzie has decided that if I don’t see her misbehave then it must be okay. I know this because she has told me as much – repeatedly.

It’s my own fault for not being clear in my language – for allowing her a legal loophole she can exploit.

‘The next time I see you snatch your sister’s toy off her, you’re on the naughty step.’

‘Okay, daddy, I make sure you not see me.’

Little bastard! If I’m cooking in the kitchen while she’s misbehaving in the lounge and I tell her off, she often closes the door and shouts, ‘You not see, it’s okay,’ and goes right back to doing it.

Sometimes she even tells me when she’s about to be naughty: ‘Daddy, don’t look, I going to push Rosie over.’

She understands the concept of differential authority too. ‘Take your sister’s dummy out of your mouth, you know your mum hates it.’

She takes it out and looks around. ‘Where is mummy?’ she asks.

‘She’s in the bath.’

So she puts the dummy back in and grins at me with an I-outsmarted-you look on her three-year-old face.

Of course, this is nothing next to the tantrums that occur Every. Single. Time. We. Say. No.

It’s a constant battle for supremacy.

‘I want to get dressed downstairs.’

‘No, upstairs.’

Tantrum.

‘I want ice cream for breakfast.’

‘No, you’re having cereal.’

Tantrum.

‘Here’s your juice.’

‘I want it in that cup.’

‘Well it’s already in this cup.’

Tantrum.

And this is all before 8 o’clock! If I could drink toddler tears, I’d never have to use the tap again.

Then there’s the insolence. Every night, for example, at some point during the night she opens all her drawers and throws every item of clothing out over the floor – and since my wife is a hoarder, that’s a lot of clothes. So every night before bedtime I say to her, ‘You will not make a mess tonight or I will be very cross with you in the morning.’

She grins at me and says, ‘I’ll make a little mess.’

‘No,’ I say. ‘No mess. All your clothes are to stay in your drawers.’

‘Okay, I’ll only empty one drawer.’

‘No. No drawers.’

And then I’ll catch her doing it in the night, and I’ll snap, ‘What did I say about not making a mess?’

And she’ll laugh and shout, ‘You say I can make a big, big mess.’

Argh!

She’s also become really mean. It first happened when I was trying to get my youngest, Rosie, off to sleep. I was rocking her in my arms about 8.30, an hour after I’d put Izzie to bed, when Izzie appeared in her doorway and informed me that she had decided to have a bath and if I didn’t like it, I should simply look away.

‘Izzie,’ I replied. ‘Close the door and go back to bed.’

‘No, daddy,’ she said. ‘You listen to me. I having a bath.’

‘Actually, you’ll close that door and go back to bed by the count of three or I’ll cancel you seeing Granny tomorrow.’

‘Daddy,’ she said defiantly, ‘daddy, you not talk to me ever again and I not talk to you ever again, okay?’

‘Be that as it may, ONE, TWO…’

The door slammed, and I heard lots of sobbing and muttering interspersed with the words ‘daddy naughty’, over and over. Sucks to be me.

This has grown into a daily tirade of, ‘Daddy, I not like you anymore. Daddy, you very naughty. Daddy, I love mummy but not you. I not talk to you anymore. Daddy, if I have to choose you or mummy, I always choose mummy.’

Which, despite her being a toddler, is incredibly hurtful.

As are the lies she’s started telling about me. Whenever she says in front of people that she doesn’t like me, they invariably ask, ‘Oh, why not?’

‘He hits me on the head and pushes me down the stairs.’

‘What!?’ I cry. ‘I do no such thing!’

Which makes me look guilty as sin.

The truth is that she’s cross with me because I discipline her, and loves her mother because she doesn’t. Indeed, her mother is her best friend who plays with her and mucks around with her and is really just a big kid to her, while I’m the authority figure who exists simply to spoil their fun.

It has, without a doubt, grown far worse since my wife has started putting Izzie to bed. I spent three years putting Izzie to bed, every single night. I spent the past ten months putting both kids to bed, every single night. I hoped, I prayed, I begged for my wife to help me out, and after three years she finally relented about a month ago and put Izzie to bed.

And from that moment on, Izzie only wants mummy to put her to bed, and tantrums if daddy tries to do it. Which, after three years of my doing it, is a real kick in the crotch.

Of course, the reason she loves her mummy doing it is because her mummy doesn’t actually put her to bed. They go to the bedroom and play. Then my wife leaves and Izzie follows her and they get into mummy and daddy’s bed and play. And then mummy goes to sleep and Izzie continues to play. And then I come upstairs and shout at Izzie for not being in bed and shout at mummy for not putting Izzie to bed, and then I put Izzie to bed and she sobs herself to sleep because daddy’s so mean and mummy is her favourite. Again, sucks to be me.

I think what bugs me most about this is that, because she is now three, she’s going to start remembering things. And despite everything I’ve done for three years, her earliest memories are going to be of her mummy playing with her and lovingly putting her to bed every night while her daddy just tells her off all the time. And that’s not fair.

What it boils down to is that my wife has all the fun, playful, exciting quality time with Izzie, while I get to do all the practical things, like wiping her bottom, cutting her fingernails, kissing her ‘ouchies’ away, taking her to the doctor, ripping off her plasters, removing her splinters, and putting her on the Naughty Step. No wonder she doesn’t like me!

I’m not sure how I can change this, however. My wife encourages me to play with her more often, but my attempts to be a fun dad have only made things worse.

A typical example – we sit down to play with her Sylvanian Families and I pick up a hedgehog and put it in the toy car.

‘Brrmm, brrmm,’ I say, before she snatches it off me and shouts, ‘No, they having a picnic!’

I see she has arranged the chairs in a circle.

‘Okay,’ I say, picking up another toy. ‘Here comes Mrs Rabbit,’ and I put her in a chair.

‘No!’ Izzie cries. ‘She sitting over here.’

‘Okay,’ I say, picking up another. ‘Where does Mr Panda sit?’

‘Mr Panda not invited!’ she shouts, slapping it out of my hand. ‘You not doing it right!’

‘Well then!’ I shout back. ‘If you won’t let me do anything then I won’t blinking well play with you!’

And then she goes to her mum all stroppy and whines, ‘Daddy not playing with me.’

I tell you, she’s driving me crazy. As if to sum it all up, she has a new favourite song. I always flick between the rock channels on TV and I stumbled across an old hip-hop classic which she instantly fell in love with. In a moment I’ve come to regret, when she asked me what it was, I told her.

We have an Amazon Dot…or Echo, or whatever it’s called. Izzie used to say, ‘Lexa, play Tinkle, Tinkle,’ and it’d play Twinkle, Twinkle Little Star by The Rainbow Collection. Ahhh.

She’s not so pure any more.

‘Lexa, play House of Pain, Jump Around.’

And then she proceeds to jump around the lounge shouting, ‘House of Pain! House of Pain! House of Pain!’

And it truly is.

But that’s only half the reason I’m blogging so rarely. The other half turned eleven months the other day, and I’ll describe that demon child in another post – if I ever get the chance again!

Fear not, Aspie Daddy fans

Regular readers of this blog might have been a little concerned by my absence over the past couple of months, particularly when my last post suggested you stay tuned for Part 2.

The truth is, I have been going through an incredibly trying time in my personal life. Far from being able to see the light at the end of the tunnel, it was too dark to find the bloody tunnel in the first place. I have been groping around blind, and not in the appropriate headspace to write about family life and parenting at a time when both were in question.

Now, we have finally turned a corner. I’ve found the tunnel and I can see enough to locate my surroundings. The light might be way off – might always be beyond my reach – but I once more believe it is there, and that is enough to keep going. These experiences might form the basis of another post one day, but for now I am going to embrace this fragile sense of security and move on.

So rest assured, I will be updating this blog again. And to start with, I’ll share some good news: a few weeks ago, over two nights mostly after midnight, in between nappy changes, bottle feeds and lullabies, I managed to write a short story in time to meet the deadline of the Writers’ Bureau Short Story Competition 2018. Reading it back, there were typos and grammatical errors and bits that make me cringe, but it amazingly won fourth prize and has been published on their website. So here is The Embrace of the Sea, and I will see you again soon.

Speaking at an Autism Conference

As part of my role as a guest blogger for Autism Wessex, the charity that provides my support, I have written a blog about speaking at the Inservice Autisme in Belgium last month alongside internationally renowned opera singer Sophia Grech and bestselling author Luke Jackson (Freaks, Geeks and Asperger’s Syndrome).

It describes what people on the spectrum can achieve if we don’t let our limitations define us, and what a positive experience it was.

If you’d like to check it out, please follow this link: Gillan Drew Wessex Blog.

Thanks for reading!

Speaking for Others with Autism

As someone who puts himself in the public eye for a cause, especially on the internet, I’m aware that this makes me a target for criticism. Mostly it’s to do with my opinion on MMR not causing autism (because it doesn’t), my belief that modern, science-based medicine is better than snake oil and superstition (because it is better), and my insistence that people with autism can and do make good parents (because we can and do – although not all of us). These criticisms I can easily brush aside.

Not all criticisms can or should be dismissed out of hand, however. There’s a pernicious idea among the younger generations (and Taylor Swift) that any criticism is trolling, and those who do it are simply ‘haters’ and bullies, which is a great way of avoiding personal responsibility and adopting the mantle of victimhood, but isn’t an enlightened way of viewing people whose opinions differ from your own. So I tend to give my critics the benefit of the doubt – that the criticism was sincerely meant, even though I might disagree with it – and I consider whether there is any merit to it, since this is how we grow as people.

My latest criticism has got me thinking, for despite being worded rather rudely and making some outlandish assumptions, it asks a pertinent question: by what right do I presume to speak for others on the autism spectrum?

I have to first point out that, while I have been told I am an ‘ambassador’ for the autism community, speaking for those who can’t speak for themselves, I have never actually claimed this myself. I recognise, however, that by putting myself out there as a speaker, author and blogger, my words and behaviours reflect upon people’s perceptions of autism, and this is not something that I take lightly. Indeed, I put a great deal of effort into getting it right, especially since I’m currently in a position to influence opinion.

On Wednesday, for example, at an autism conference in Belgium, I spoke to two-hundred delegates about what it’s like to live with autism and how I manage to cope. Also on the bill at Inservice Autisme 2017, in the small village of Oostmalle outside Antwerp, were two other Brits with autism: internationally-renowned opera singer Sophia Grech, and bestselling author of Freaks, Geeks and Asperger’s Syndrome Luke Jackson. So, what right do I have to speak at such an event?

My answer is: I have every right. I talk about what affects me and other people I have met with autism, what has helped me to cope and what has helped others. I point out some of the issues you might face living on the autism spectrum and how these might be overcome. As you don’t cease to be an individual when you’re diagnosed, I am up front about the fact that the things I say will apply to some people more than others, and while some coping strategies might work, they are certainly not for everyone. The important thing is to make sense of your own experience and find out what works for you.

I don’t think there’s anything particularly offensive about that.

I have also been told I shouldn’t speak for others with autism because I have a wife and children, a book and a blog, and I have worked in the past – that my achievement of various life goals makes me ‘atypical’ (i.e. too successful) and thus invalidates my experiences of autism. Inherent in this accusation is a very negative view of people on the autism spectrum, as though to qualify as autistic you must necessarily be unfulfilled, downtrodden and miserable, and this is an opinion that simply does not ring true for me.

I have met hundreds of people on the autism spectrum, and I continue to be amazed by their diversity. In just four months of public speaking I’ve spoken to many Aspies with wives and children, jobs and homes. After every speech I have given, people on the spectrum have come up to me and told me I could have been describing their lives and that what I said really resonated with them. To say that I am ‘atypical’ and cannot relate to others on the spectrum is therefore simply wrong.

It has also been assumed that, because I take a positive, hopeful view of the prospects for those of us on the spectrum, I shouldn’t speak for those who don’t have it as ‘easy’ as me, or the same ‘advantages’, as though I lead a blessed like free of strife and woe. I don’t think anything could be further from the truth. I could offer to show all my self-harming scars from years of struggle, but instead I’ll say what it took to attend the autism conference to show how ‘easy’ it was.

As a stay-at-home dad/unemployed guy with a two-year-old, a seven-week-old and an autistic wife who can’t be left alone with the kids for more than a couple of hours, attending the conference was tough. First, my wife was very abusive when she first found out about it in April because she was scared of me going away and her not being able to cope; despite organising for people to sit with her while I was away, and for her to stay at her mum’s, she remained hostile about it right up until the time I left, telling me I would likely be killed by terrorists in Belgium and that I didn’t love my family, etc., etc. This is what she does when she is feeling vulnerable – she goes on the attack.

As I tried and failed to book a flight to Belgium (I found it too difficult, for while I am capable of some things, I’m incapable of many others), I sought help from my dad, who agreed to drive me. He wanted to take the Channel Tunnel, but as I’ve been on it before and found it claustrophobic, I asked for us to take the ferry because I was worried I might have a panic attack.

On the day of the journey I was up at 3am with the baby and didn’t return to sleep. I left home at seven and it took more than twelve hours of travel to reach Oostmalle. Upon arrival, I was terrified, had an upset stomach, and struggled to keep my anxieties in check.

Entering the conference centre, I was confronted by 200 Dutch people eating dinner, drinking in the bar, and milling about in a noisy, dark environment. The organisers sought me out and directed me to the ‘English Corner’ where Sophia Grech sat with Luke Jackson, two titans of the autism community. So I dug deep, swallowed down my fears, and introduced myself.

After an hour of trying to hear people over the noise and hiding behind a bottle of Coke, my father drove me to the hotel. I rang home to check on things, to find my wife sobbing, the baby screaming, and my toddler crying down the phone, ‘Mummy very sad! Mummy very sad!’ Not easy.

After my dad went to sleep, I worked on my speech, as this was the first opportunity I’d had to be in a clear headspace – or as clear as it could be.

In the morning, I was really panicking. I had to take pills for my upset stomach, struggled to breathe, and wasn’t sure if I’d be able to keep my heart inside my ribcage. As we arrived I puffed out my cheeks, blew out my breath, and flapped my hands like a baby bird trying to take flight. And then I forced it all inwards and painted on my mask, my happy, confident face, and entered the fray.

The speech went well, very well, in fact. I really felt as though I made a difference, and the feedback afterwards showed that it went down a treat. For the next few hours I hung around with Luke and Sophia, and despite my fears, they were two of the coolest, nicest, most down-to-earth people you could hope to meet, with stories and experiences and ideas very similar to my own. In fact, to find myself in such agreement with others was both a rarity and a validation of my own views on autism.

The next day, exhausted and headachy and socially hungover, dwelling on every word I’d said in my speech and worrying if I’d done justice to the wider world of autism, I got up at six to leave at seven for the twelve hour journey home, whereupon I immediately resumed my parenting and caring roles.

I mention this to show that while things might be hard, those of us with autism can achieve amazing things if we have the courage and drive to confront our problems and refuse to let them hold us back. And if people still think I don’t understand what it is to struggle, that I don’t find things difficult enough to be a ‘proper’ Aspie, and that my life is too easy to be relatable, then it says more about them, I think, than it does me.

So why do I do it, if I find it so hard? I do it because I can do it, and I genuinely want to help. My life has been so hard I want to make things easier for others, and if sharing my experiences, opinions and coping strategies can make an autistic person’s life just a little bit easier, that’s what I’m going to do, regardless of whether critics think I’m entitled to or not.

I’ll leave you with the comments of a girl in my village who also has autism. She has struggled all her life but is now doing voluntary work and trying to make something of herself. She’s quite open about the fact that she isn’t articulate enough to describe what it’s like living on the spectrum and doesn’t have the confidence to speak in front of people anyway. Here is what she wrote on my Facebook page a few weeks ago:

‘You’re amazing and you’re doing a great job for everyone else who has autism like you and me and everyone else. I’m really proud of you.’

And the other day she wrote:

‘I and everyone else with autism is going to look up to you. You change people’s lives. Congratulations.’

Am I entitled to speak for others on the autism spectrum? I’ll leave you to decide.